EMIS 2017: European MSM Internet Survey
Sigma @ LSHTM and a range of partners has been funded as part of the European Commission Health Programme 2014-2020 to deliver evidence about the sexual health of gay men, bisexual men and other MSM across Europe. Called ESTICOM (European Surveys and Trainings to Improve MSM Community Health) the partnership will deliver on three inter-linked projects over three years from August 2016 to August 2019.
The 3 main projects are:
- A pan-European online survey of MSM that will be known as EMIS 2017.
- A pan-European online survey about knowledge, attitudes, practices and training needs of community health workers (CHW) who provide health-related services and support for MSM in EU countries (European Community Health Worker Online Survey – ECHOES).
- Development and piloting of a training programme for MSM-focused community health workers intended to be adaptable for all EU countries.
The overall aim of EMIS 2017 is to generate data useful for the planning of HIV and STI prevention and care programmes and the monitoring of national progress in this area (by comparing with the results of previous surveys). The survey seeks to describe the level and distribution of HIV transmission risk and precautionary behaviours; related HIV prevention needs; and to assess self-reported STI testing behaviours, testing performance and STI diagnoses, including viral hepatitis. At a country level, the survey will generate data for understanding the needs of populations and directing prevention programmes. At the international level, patterns of policy, service and cultural responses can be examined for their impact on epidemic spread and containment, providing knowledge beyond the grasp of any one country.
EMIS 2017 was live and collecting data from gay, bisexual, and other MSM in 50 countries between 18 October 2017 and 31 January 2018. The online questionnaire was available simultaneously in 33 languages - PDFs of all the language-versions of the questionnaire are available here. About 137,000 MSM in our 50 target countries took part and submitted their answers including 100,000 in the European Union, more than 6,000 in EFTA countries, and about 7,000 in countries in the EU Enlargement Area or the European Neighbourhood Policy. We also recruited 6,000 MSM in Russia, 6,000 in Canada and on behalf of WHO (Western Pacific Region), 3,500 in the Philippines.
We are currently merging, sorting and cleaning the whole dataset and preparing an EMIS 2017 Variable Manual, as well as an analysis plan for the main European Report. The analysis to establish priority areas for reporting will take account of the ESTICOM MSM review of the current European situation. First data feedback occurred at an expert workshop in late April 2018 in Berlin, where we sought input from partners, funders and other experts on the ideal structure for our final report. We hope National data-sets will be available soon, as soon as we have consensus on the legal staus of our Data Transfer proposals.
EMIS 2017 is undertaken by Sigma Research at the London School of Hygiene and Tropical Medicine (LSHTM) in association with the Robert Koch Institute (RKI) in Berlin. EMIS core team: Ford Hickson, David Reid, Axel J. Schmidt and Peter Weatherburn @ LSHTM and Uli Marcus @ RKI.
Primary Funding: EU Health Programme 2014-2020 for Europe.
Other international financial contributions: Swedish Ministry of Health for recruitment in the Nordic Countries; Norwegian Directorate of Health for Russia; Israel Ministry of Health for Israel; Public Health Agency of Canada for Canada; WHO Western Pacific Region for the Philippines.
Acknowledgements: We begin by thanking all of the men who took part in EMIS 2017 and our partners who recruited 17% of all respondents through activities on Facebook and other social media and by placing EMIS banners on their websites. We thank all our partners for being part of something huge!
The following list acknowledges all partners in EMIS by country. Individual names are mentioned if a freelancer was the main contact and/or translator or where input on the questionnaire development came from a person not formally representing an organisation. The order is: main NGO partner, other NGO partners, academic partners, governmental partners, individuals.
Europe: PlanetRomeo, European AIDS Treatment Group (EATG), Eurasion Coalition on Male Health (ECOM), European Centre for Disease Prevention and Control (ECDC), European Monitoring Centre for Drugs & Drug Addiction (EMCDDA), European Commission (DG SANTE). We would like to highlight the individual contributions of Dr Caoimhe Cawley (ESTICOM consortium coordination October 2016 to May 2018), and Teymur Noori for continuous support for EMIS since the first version of the project in 2010.
AL: Arian Boci. AT: Aids Hilfe Wien, Dr Frank M. Amort. BA: lgbti.ba, Masha Durkalić. BE: SENSOA, exaequo, Observatoire du SIDA et des sexualités. BG: HUGE, GLAS Foundation, Petar Tsintsarski. BY: Vstrecha. CA: Health Initiative for Men, CATIE, Gay Men’s Sexual Health Alliance of Ontario, Université du Quebec & Montréal, University of Toronto, University of Windsor, Public Health Agency of Canada, Rob Gair. CH: Swiss AIDS Federation, Cantonal Hospital St. Gallen, Centre Hospitalier Universitaire Vaudois, University Hospital Zurich, Swiss Federal Office of Public Health. CY: AIDS Solidarity Movement. CZ: AIDS pomoc, National Institute of Public Health, Tereza Zvolska, Dr Michał Pitonak. DE: Deutsche AIDS-Hilfe, Robert Koch Institute, BZgA, Dr Michael Bochow, Dr Richard Lemke. DK: AIDS-Fondet, Statens Serum Institut, François Pinchon, Jakob Haff. EE: Eesti LGBT, VEK LGBT, Estonia National Institute for Health Development, Dr Kristi Rüütel. ES: Stop Sida, CEEISCAT, Ministerio de Sanidad. FI: Positiiviset, Hivpoint, SeksiPertti, Trasek. FR: AIDES, Coalitionplus, SexoSafe, Santé Publique France, INSERM. GR: Ath Checkpoint, Thess Checkpoint; Positive Voice. HR: Iskorak, gay.hr, Dr Zoran Dominković, Vjeko Vacek. HU: Háttér, Tamás Bereczky. IE: Gay Health Network, Man2Man, HIV Ireland, Outhouse, GOSHH, Sexual Health Centre Cork, AIDSWEST, Gay Community News, Health Service Executive, Gay Men's Health Service, Sexual Health and Crisis Pregnancy Programme, Health Protection Surveillance Committee. IL: Israel AIDS Task Force, Israel Ministry of Health, Dr Zohar Mor. IS: Samtökin '78. IT: Arcigay, Fondazione LILA Milano ONLUS, University of Verona, Dr Raffaele Lelleri. LB: SIDC, Dr Ismaël Maatouk. LT: demetra, LGL, Gayline. LV: Testpunkts, Baltic HIV Association, Dr Antons Mozalevskis, Indra Linina. MD: GENDERDOC-M. ME: Juventas. MK: Subversive Front, Dr Kristefer Stojanovski. MT: Malta LGBTIQ Rights Movement, Allied Rainbow Communities, Infectious Disease Prevention and Control Unit (Malta), Silvan Agius, Russel Sammut. NL: Results in Health, Maastricht University, Amsterdam Pink Panel, Soa Aids Nederland, Rutgers, Dr Wim Vanden Berghe. NO: Helseutvalget, Folkehelseinstituttet, Dr Rigmor C. Berg. PH: Bisdak Pride-Cebu, Cebu Plus, HASH, Pinoy Plus, UP Babaylanes, YPEER, TLF, Natasha Montevirgen, Mikael N. Navarro. PL: Spoleczny Komitet ds AIDS, Kampania Przeciw Homofobii, Lambda Warszawa, Dr Łukasz Henszel. PT: GAT Portugal, CheckpointLX, Associação ABRAÇO, rede ex aequo, SexED, dezanove, ILGA Portugal, Trombeta Bath, ISPUP. RO: PSI Romania, ARAS Romania, Tudor Kovacs. RS: Association Duga, Association Red Line, Omladina JAZAS-a Novi Sad, Institute of Public Health of Serbia, Sladjana Baros, Dr Marija Pantelic. RU: LaSky. SE: RFSL, University of Gothenburg, Folkhålsomyndigheten. SI: ŠKUC, Legebitra, LJUDMILA. SK: PRIDE Košice, Light-House Slovakia, Trnavská univerzita, Slovenská zdravotnícka univerzita, Dr Zuzana Klocháňová. TR: Pozitif Yaşam, Sami Sarper Yazıcılaroğlu. UA: Alliance for Public Health, alliance.global, msmua.org, Oleksii Shestakovskyi. UK: Terrence Higgins Trust, NAM, PrEPster, Antidote, Horizon Drugs and Alcohol Support, LGBT Foundation, Yorkshire MESMAC, MESMAC Newcastle, Derbyshire LGBT+, Trade Sexual Health, London Friend, GMFA, Spectra, International HIV Partnerships, International Planned Parenthood Federation, Bristol University, University College London, Sigma Research, Raul Soriano. Other: Dr John Pachankis, Dr Mark Hatzenbühler, Dr Valeria Stuardo Ávila, Dr Michael W. Ross.
EMIS co-ordination: Axel J. Schmidt
- Lead organisation: Robert Koch Institute (RKI, Berlin)
AIDS Action Europe (AAE, Berlin)
Centre d'Estudis Epidemiologics sobre les ITS i la Sida de Catalunya (CEEISCAT, Barcelona)
Deutsche AIDS-Hilfe (DAH, Berlin)
European AIDS Treatment Group (EATG, Brussels)
ResultsinHealth (RiH, Leiderdorp)
Sigma Research @ LSHTM (London)
Terrence Higgins Trust (THT, London)